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Home » Families In Need

Baby Vance

Submitted by admin on September 3, 2010 – 11:10 am4 Comments

Baby Vance & Family

Baby Vance is seven months old and was diagnosed with Down syndrome and congenital heart defects requiring several open heart surgeries. Baby Vance is already a little miracle. He was sent home shortly after his birth with a life expectancy of less than one month. His mom had to leave her job to care for him full time and keep up with his many doctor’s appointments each week. This family needs help with groceries and medications. Vance has two teenage sisters. Please help CrossBridge provide ongoing support, meals and medications for Vance’s family.

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4 Comments »

  • Vance is a wonderful MIRACLE of God. His life serves as a testimony to His Glory and for hope to many who have little. I believe it was for this purpose that we were lead to Cross Bridge. We have been allowed to meet and share Vance’s life story with many other families. To share a little of that story with you, Vance was diagnosed with Down syndrome and HLHS when I was 15 weeks pregnant. We were told many times that he may not even survive the pregnancy. I grieved for a life that hadn’t even been born yet. We were later told his heart defects were worse than just HLHS. The whole top two chambers were open, valves were missing or incorrectly formed, and his aorta was too small. At his birth they found more defects and warned us that developmental delays could be severe due to the combination of the heart defect and Down. This is an uncommon pair and the degree of severity in his heart defects was also unusual. His chances for survival were very slim even with surgery, so the decision to spare him any pain from a highly aggressive and risky surgery was made. We were told on his third day of life, without medical intervention babies like him lived only 24-48 hours. We were already on borrowed time. We took him home on hospice and settled into our existence. Though we lived each and every day scared that this would be the last, God gave me peace to know that this was what was best for Vance, which was JUST enough to bear it, no more no less. Vance was a precious gift that was not meant to be held forever and at some point I would have to give him back to God. After all, he was His. One day lead into the next. Days becoming weeks then months, each one more precious than the last. At 3 months we went back to Cardiology to find out, in our minds, how long we had left with Vance and what we could expect. To our and, truly the doctor’s amazement as well, the artery Vance’s life depended on had closed! Here he was alive when he shouldn’t have been. With the biggest smile I have seen on her face, the doctor said we could go ahead with the surgeries at this point if it was what we wanted. She also said that had I waited a few weeks longer to see her, permanent damage to his lungs would have prevented this option. God is so wonderful to us! Vance has now gone through two heart surgeries. They have found even more defects and there have been serious complications, but he continues to overcome all obstacles and astound the doctors & therapists he works with. My prayer is that through Cross Bridge’s support system, we will continue to share the hope of an unexpected miracle with other families.

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